What a heartbreaking story! After a devastating loss last year having a stillborn baby, this couple got pregnant again and had no issues during pregnancy. Once he was born, they realized he had a rare skin condition called EB where any normal friction tears the skin off so badly that it acts like burns. He has "burns" all over him. They're treating him like a burn victim and having to change his dressings on a regular basis and he's in a lot of pain so he's on a constant morphine drip. I just can't stop praying for this family and I don't even know them personally. Please say a prayer for Jonah and his family!
Here's an article about the family on the front page of their local paper.
Here's her blog:
My heart is so heavy thinking about this family and their future with their baby when it should be the happiest time in their lives. Say prayers!
4 comments:
oh that is so sad. thank you for sharing the story so more can pray.
Oh no, I am so sorry. I will oray for litle Jonah
How sad! I can't stop the tears. My thoughts, heart, and prayers will be with them for now on! How sad.
I have heard you talk about this family before. But seeing the pictures makes it real. Thank you for sharing. We are praying for Jonah and his family.
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